He would pick any checkered pattern in his environment and point to it (it meant five guys because that place has a checkered decoration on the wall). If he saw a game at the store with french fries or hamburgers, or even pizza, the tantrums would start. Everything would trigger him. And not just little triggers- full on fifteen year old boy tantrums where when he's mad, it's like he's a 250 pound man (even though he only ways about 125!!). Even when I would give him another place to go other than his trigger places he would cry because he wanted them. He was just miserable. Plain and simple. No matter what we did. I put those places on schedules, we removed them completely, we went there every morning- nothing ever worked because nothing was ever enough. His brain was completely stuck. Here are some pictures of those dreary moments.
He was just not happy. So his mom and I went on a journey to try and find someone that would help him. Again, we exhausted every behavioral intervention- you name it, I tried it. And consistently. I can't even tell you the horror stories we went through trying to find someone to help him. His mom documents some of it on her blog as well, Let Go & Run Free. For now, just know after weeks of searching and trying to get help, finally one doctor agreed to help. Kreed is incredibly complicated with his medical diagnosis as well (seizures, immune deficiency, SCAD (metabolic disorder), hypothyroidism...just to name a few) and so many of the doctors didn't want to help because of the liability. Oh geez! This kid was suffering! So finally with the doctor that agreed to help, we talked it out, decided on a course of action.
And, it was like magic. We had the kid back! His OCD has faded away and what's left has been a happy, healthy boy! No self injury, no tantrums. He has replaced it all with hugs and kisses. He is even more aware now than ever- he is talking on his device more, he is wanting to be more social than he was before- he's just "back" and better than ever! We love it. It was such a long journey for him. There will be many more updates from now on. Before, I could barely record videos because there was just nothing but anger and irritation- all due to his severe OCD. It's like he was stuck and blocked and couldn't get his brain to move past it. My heart feels so sad for this boy. Now it's like his whole world has opened up and he is happy again. He's so happy he keeps requesting to have a party!! How funny is that?
Here are a few picures showing the change- you can even see the new awaress n his eyes.
And my personal favorite photo below. It's just such a miracle and so wonderful to have him so aware again and even more so and not be shackled to his OCD. It really and truly was his severe OCD that got in the way and made him so miserable. Now he is smiling every day, has no problem going and and doing stuff and is just thrilled every day. He can even be told "no" now and have it not be the end of the world. He just moves on no problem. In fact, now he wants to know "why" if I tell him no. Once I give him an answer he moves on. I just love it. Love him. Can't wait to document more of his progress. Check out his youtube: Kreed's Videos to see some of our videos there.