Some days...

Some days are better than others. Kreed's OCD started again and so we have nights like these...

 

But I wish it was like this...

Some days...

Some days you wonder what's going through Kreed's head...

I went back to his room after hearing noises and this is what I find...

Just why? He ripped after his mattress cover...so I put a new one on and he tried for a while to get that off too, but I finally convinced him to keep it on! But seriously, why!?

Kreed makes his first phone call!

From Kreed's youtube: Kreed's had a tough few months medically so I haven't posted many videos. But the other day we started to have some more breakthroughs. Kreed said "me call Bill" (Bill is his favorite respite provider). So I texted Bill and he said we could call. Originally it was going to be a video call but his video feed wouldn't link up. It took Kreed a few minutes to recognize we called him and he was on the phone. I used my iPad and Skype for the call. It was amazing. Here is the final three minutes of that call. Kreed is shown his phrases page but for the most part Kreed is choosing what to say. Also of note- Kreed found "call" verb on his own and I still don't know where he found that!! Enjoy!

http://www.youtube.com/watch?v=pE8Bp5INP1U&sns=em

Changes!

So finally Kreed has been doing better. Tantrums are a little less and not as intense. For a few months it was really hard. Multiple tantrums a day and incredibly intense. When you're in the middle of it, that becomes your whole world and all you can see. Kreed stopped focusing on gaining skills and seemed to be in a lot of pain. Now that we had him checked out and began various treatments a lot has gotten better. I'm pretty sure he stopped having seizures and focuses a lot better. His pain seems to be less now with anti-inflammatories. 

With his device- we've entered a whole new world. Despite Kreed's issues- he seems to have prepped himself for a huge leap forward and we re-programmed his device so he will be able to communicate more effectively. He will be able to form sentences better and with more precision! More videos to come. 

So we had some rough months and some major issues, but out of it comes some few new language skills! Only hard thing now is his severe obsession with some food places and particular foods. So that will be our next major challenge!

New Blog!

Well, we started out with a blog on tumblr (which can be seen here: www.kreedsworld.tumblr.com), but decided to come back to blogger due to features such as being able to leave a comment. So here we go on the blog here! Be sure to check out Kreed's Youtube page: www.youtube.com/kreedsvideos where we frequently update his progress on using his AAC device and other skills. Lately Kreed has faced many issues, which his mom gives a brief history on her blog seen here: http://www.letgorunfree.blogspot.com/2013/06/i-am-his-voice-he-is-my-heart.html. As for me, I just document Kreed's journey and try to capture this unique kid the best I can and to show others what he is capable of. His whole life everyone said Kreed couldn't do this or that (like communicate with a device or write his name). So it's been my mission to prove everyone wrong and show them the awesome kid he is and how far he has come and how far he will go. His mom has gone to great lengths to give Kreed the best help available and has never given up on him and so I joined this journey with them to help and suppor the best way I can. See, look at this cute kid!

 

And so begins our journey now on blogger!