tag:blogger.com,1999:blog-765016914859440639.post7355965337276025468..comments2024-02-19T09:43:31.474-08:00Comments on Kreed's World: When he can't tell meErinhttp://www.blogger.com/profile/05218364624929926195noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-765016914859440639.post-64812562957990884522016-09-15T20:33:05.614-07:002016-09-15T20:33:05.614-07:00What you said Erin is something that 99 percent of...What you said Erin is something that 99 percent of the world will never experience dealing with an individual who is non verbal and has a hard time expressing themselves with regards to telling you about their pain.<br /><br />The inventors of AAC devices I'm sure never imagined how powerful their devices would be with regards to Kreed's many conditions and how he expressed himself even under so much pain.<br /><br />You did an amazing job teaching Kreed how to internalize his pain and then to express his pain levels to you. I have watched and rewatched the videos you posted on YouTube and I often wondered how Kreed internalized his pain and then used his device to ask for help . <br /><br />Thank you very much for your Blogs they really give insight into the often avoided part of raising an individual with special-needs and who are medically fragile. Most Parents do not want to share their child's disabilities or medical conditions for fear they will be rejected or for fear that people will be afraid to be around them. I suspect many Parents are at the end of their rope and often leads to other unwanted consequences. <br /><br />Wishing you good health and I hope you will continue to write blogs as powerful as this one. You chose very good quotes and your writing style speaks to me in so many ways.Anonymousnoreply@blogger.com