tag:blogger.com,1999:blog-765016914859440639.post1947022282760155087..comments2024-02-19T09:43:31.474-08:00Comments on Kreed's World: You'll Be the One Who KnowsErinhttp://www.blogger.com/profile/05218364624929926195noreply@blogger.comBlogger25125tag:blogger.com,1999:blog-765016914859440639.post-45295373663044895662017-11-18T04:48:48.906-08:002017-11-18T04:48:48.906-08:00I Love Kreeds World So Much 😊I Want More Longer V...I Love Kreeds World So Much 😊I Want More Longer Videos OK Ple<br />ase Be Thankful You Other Family Members To For ErinAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-67342122412812982772015-03-05T14:31:35.044-08:002015-03-05T14:31:35.044-08:00That's too bad as I was a loyal follower on fa...That's too bad as I was a loyal follower on facebook. I bet some idiot messed it up for you. That's too bad. Good luck and I hope Kreed feels better soon. I was worried for him when the FB page disappeared.fifermomhttps://www.blogger.com/profile/02854703838134949761noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-89969489097667985132015-03-01T21:29:05.126-08:002015-03-01T21:29:05.126-08:00Thank you so much!Thank you so much!Erinhttps://www.blogger.com/profile/05218364624929926195noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-84645706463728443282015-03-01T21:28:53.421-08:002015-03-01T21:28:53.421-08:00We hope to reopen it in the future and I will expl...We hope to reopen it in the future and I will explain better why it came down temporarily. I will try to keep the blog open and updated.Erinhttps://www.blogger.com/profile/05218364624929926195noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-74939745005608574852015-03-01T21:28:14.312-08:002015-03-01T21:28:14.312-08:00I know. We've had to close it temporarily. I h...I know. We've had to close it temporarily. I hope to reopen it soon and explain. I will try to keep the blog open and updated.Erinhttps://www.blogger.com/profile/05218364624929926195noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-20739732152211936462015-03-01T21:27:49.232-08:002015-03-01T21:27:49.232-08:00We are okay. There were issues that caused us to c...We are okay. There were issues that caused us to close his facebook for now, we hope to reopen in the future. I will try to keep the blog open and updated.Erinhttps://www.blogger.com/profile/05218364624929926195noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-61840727741298223582015-03-01T21:27:19.307-08:002015-03-01T21:27:19.307-08:00We are okay. There were issues that caused us to m...We are okay. There were issues that caused us to make his facebook private for now. I will try to keep the blog open and updated.Erinhttps://www.blogger.com/profile/05218364624929926195noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-40857781743034784442015-03-01T21:26:53.283-08:002015-03-01T21:26:53.283-08:00Thank you! I hope so too!Thank you! I hope so too!Erinhttps://www.blogger.com/profile/05218364624929926195noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-48481899135844324072015-03-01T21:26:36.059-08:002015-03-01T21:26:36.059-08:00Kenneth, thank you so much for your thoughts. Your...Kenneth, thank you so much for your thoughts. Your comment has meant so so so much for me! To know that someone who has autism seems the love we have for Kreed and made you reflect on your own parents love for you. Thank you!Erinhttps://www.blogger.com/profile/05218364624929926195noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-17056861640323257892015-03-01T21:25:49.308-08:002015-03-01T21:25:49.308-08:00Thank you for your comment (and all your comments!...Thank you for your comment (and all your comments!) It's amazing what we have to do when our kids can't tell us whats wrong!Erinhttps://www.blogger.com/profile/05218364624929926195noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-30173509401547696122015-02-25T22:22:41.686-08:002015-02-25T22:22:41.686-08:00Well said. We looked forward to the daily posts an...Well said. We looked forward to the daily posts and updates. They will truly be missed.MNcjdhttps://www.blogger.com/profile/09994284688320787164noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-61602650891111838042015-02-25T08:40:53.687-08:002015-02-25T08:40:53.687-08:00Thank you for all the inspirations you gave all of...Thank you for all the inspirations you gave all of your followers families. My daughter is better off with the information you made available to us. Kreed is awesome and you're awesome Erin. May you and your family be blessed all your years. Thanks again!MommySmithhttps://www.blogger.com/profile/00627226412762758459noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-21455756377294816902015-02-23T16:46:50.938-08:002015-02-23T16:46:50.938-08:00I am very sad to hear that you will no longer have...I am very sad to hear that you will no longer have your Facebook page but I do understand. I just want to thank you for all the joy and smiles Kreed brought to me and thousands of others. He is a wonderful young man who I will dearly miss but never stop praying for. You are an awesome mom who has tought many so much and I thank you for that. Good luck and God bless!Trish Lovetthttps://www.blogger.com/profile/17198435792935602886noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-62666188830515383812015-02-23T06:16:13.097-08:002015-02-23T06:16:13.097-08:00Oh that's so sad :( I'm going to miss see...Oh that's so sad :( I'm going to miss seeing his pictures and progress so much. Erin, I would love to email back and forth with you if you are able. Daisygirldesigns @ yahoo dot comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-20203521485937437712015-02-22T23:09:58.917-08:002015-02-22T23:09:58.917-08:00The family decided it was in Kreeds best interest ...The family decided it was in Kreeds best interest and safety to make the page private. You will be missed, you and Kreed are an amazing inspiration to so many Anonymoushttps://www.blogger.com/profile/00278573141025717522noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-20999157962026650132015-02-22T22:42:16.482-08:002015-02-22T22:42:16.482-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/00278573141025717522noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-83931328139414758962015-02-22T22:41:52.321-08:002015-02-22T22:41:52.321-08:00I can't even find their facebook page anymore ...I can't even find their facebook page anymore :(<br />Anonymoushttps://www.blogger.com/profile/00278573141025717522noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-47992170763251849862015-02-21T20:40:41.771-08:002015-02-21T20:40:41.771-08:00Terribly worried about Kreed. Sending prayers and ...Terribly worried about Kreed. Sending prayers and hugs and love.Pamhttps://www.blogger.com/profile/14698485041005597804noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-19777639339846015582015-02-21T12:52:55.713-08:002015-02-21T12:52:55.713-08:00I am also very concerned. Are you two ok? Xxx I am also very concerned. Are you two ok? Xxx Melhttps://www.blogger.com/profile/00296673730223133512noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-4169567251825753862015-02-21T11:52:01.284-08:002015-02-21T11:52:01.284-08:00Is everything ok with you and Kreed? Yesterday the...Is everything ok with you and Kreed? Yesterday the blog and Facebook and all the videos were marked private? I was so concerned! I hope the Facebook will e opened up again, I don't have an account there (and don't want one) but your guys are so inspirational and helpful to Matthew and I. Please don't stop sharing :) I have been praying for you both and pray everything is alright.<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-75986062084073307962015-02-21T11:48:45.737-08:002015-02-21T11:48:45.737-08:00Wow very similar stories! Swallow study said they ...Wow very similar stories! Swallow study said they didn't see anything wrong, but he was refusing to swallow during the study.....so I'd love to hear more about your story too, can you email me and we can talk at length? Daisygirldesigns @ yahoo dot com<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-26953023385278488012015-02-16T15:59:34.932-08:002015-02-16T15:59:34.932-08:00Hi. I was wondering when you said your son Matthew...Hi. I was wondering when you said your son Matthew no longer swallows, did you mean he does not swallow anymore or that his swallow mechanism or his esophageal motility has changed? I am asking because my son who is also autistic , nonverbal , multiple diagnoses , also lost his ability to swallow. We did a swallow study and he no longer has motility in his esophagus so when he tries to swallow only gravity moves the food down . Because of this, he began to refuse to eat . My son already had a G-tube in place but it was hard for us because we have been working for years on getting him to eat. My son also has odd rashes all over his body and several other things that happen the doctors can't explain . Any information you have would be great .Unknownhttps://www.blogger.com/profile/09411170325155439900noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-74794854315761272222015-02-16T14:09:20.940-08:002015-02-16T14:09:20.940-08:00Erin - I know only a fraction of this because my s...Erin - I know only a fraction of this because my son doesn't have the medical issues Kreed does but I understand how scared and worried you are and how much pain you are in. You and Kreed are lucky to have each other. I hope he is on the mend very soon. Melissahttps://www.blogger.com/profile/16254062511031110341noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-26300218809477543862015-02-16T12:51:43.066-08:002015-02-16T12:51:43.066-08:00Hi, I wanted to say thank you for your facebook an...Hi, I wanted to say thank you for your facebook and blog. You have a unique way of providing a view I never saw before,  as someone with autism I never understood the frustration that my parents must of gone through with me. It must of been painful for my parents watching me be lost all the time, biting,  and hitting myself, never fitting in with others in my peer-group. If that wasn't enough having counselor,  psychological professionals, teachers, and and just about everyone telling my parents that I should be placed in institutions because I didn't talk until latter in life, and I never really fit in must of weighted heavy on there well being.I know they would get frustrated at me for crawling under a chair and refuse to come out for hours, or trying to teach me simple things that I wouldn't grasp, the endless list of normal life tasks that escaped me.I also had issues with continual infections, bones that would stop processing iron leaving me sick and confused. All the things that I really never understood or thought about until I read some of your personal accounts, now I can say thank you to my parents, thank you for driving me miles and miles every week to take me to the special school, for not giving up on me when everyone else was saying I would never be able to function,  even to this day you check up on me. Thank you for sharing your experience, thoughts, joy, and struggles.Kennethhttps://www.blogger.com/profile/06623193112448601824noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-2348654255924971532015-02-16T11:36:51.990-08:002015-02-16T11:36:51.990-08:00Oh momma, I'm praying for Kreed (and you) righ...Oh momma, I'm praying for Kreed (and you) right now. As Matthew communicates more and more I am seeing a pattern of pain/meltdown and he's also a mixed case....no idea what caused him to just stop swallowing and end up with a feeding tube. Doctors can't figure it out and he gets weird rashes no one can figure out too. I can relate somewhat to the late night searches, trying to figure out what the problem is....and loving him so much that it's overwhelming and just hoping, praying he knows it. In those hard times, knowing what Jesus suffered for me, that He has saved me by the shedding of his own blood, knowing he understands and is with me, keeps me going. I think of you and kreed so often, and you are in our prayers. May the Lord give you the strength for today.<br />Anonymousnoreply@blogger.com