tag:blogger.com,1999:blog-765016914859440639.post1898305642477759459..comments2024-02-19T09:43:31.474-08:00Comments on Kreed's World: This was not a Norman Rockwell Christmas...Erinhttp://www.blogger.com/profile/05218364624929926195noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-765016914859440639.post-959613580724576442016-01-01T07:48:05.303-08:002016-01-01T07:48:05.303-08:00One parent stays home with him and the other works...One parent stays home with him and the other works. Like most families. Kreed is incredibly disciplined. He gets grounded and in trouble for unacceptable behavior. The behavior is not a result of his autism. It's a result of his medical issues. He only rages with low blood sugar, low oxygen, migraines, neuropathy, adrenal crisis or seizures. That's right, due to his medical issues he can't live in the real world. Neither can most people with his severe medical issues. If he just had autism our life would be simple. His combination of medical issues is life limiting. He is a make a wish kid. He cannot live a normal life due to his medical issues. Most people who have even a fraction of his medical issues report they can barely get out of bed and most live on disability. His neuropathy alone makes every single day and every step he takes incredibly painful. <br />I challenge anyone to live with what he has to live with and let me know it works for them. Imagine waking up every day with your entire body feeling like its asleep and sharp pins and needles hammering your body. That's what he wakes up with. At times he's even wheelchair bound. So that's right buddy- he can't live even close to a normal life because every day he has life threatening illnesses and he could go at anytime. <br />Kreed does not rule the roost. He has rules just like every other child. But we keep him happy and comfortable because guess what- he will never get to do the things you get to do. He will never get to live the life you get to live. He lived in constant unrelenting pain every single f'ing day of his life. I challenge you to live with such pain daily and let me know how great your life is. <br />We get out of bed in the middle of he night to get him food because he's raging to stay alive because his blood sugar has dropped to 20. Any lower and it means a coma and or death. So go ahead and tell me how that's ruling the roost. Do you know what it's like to find Kreed with with a blood sugar of 18, seizing and unresponsive in bed? It's a parents night mare. We almost lost him that morning. He has several medications that we have to jab in him if he's ever unresponsive. <br />His issues and inability to do things has NOTHING to do with autism and EVERYTHING to do with his daily life threatening medical issues. Because you judge or think Kreed has some easy life where he gets everything he wants, learn about his life and the pain and illnesses he lives with. Erinhttps://www.blogger.com/profile/05218364624929926195noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-26587710233012800002016-01-01T02:17:28.689-08:002016-01-01T02:17:28.689-08:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-46884400876502668052015-12-28T14:32:55.292-08:002015-12-28T14:32:55.292-08:00Erin you are amazing xxErin you are amazing xxAnonymoushttps://www.blogger.com/profile/07754507028716922062noreply@blogger.com