tag:blogger.com,1999:blog-765016914859440639.post1783607494561079805..comments2024-02-19T09:43:31.474-08:00Comments on Kreed's World: Not That Kind of AutismErinhttp://www.blogger.com/profile/05218364624929926195noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-765016914859440639.post-88439496022127015722016-02-05T12:21:40.713-08:002016-02-05T12:21:40.713-08:00My son is 19 with severe Autism and is nonverbal. ...My son is 19 with severe Autism and is nonverbal. <br />He too has had rages. <br />He has developmental delays - he's always had developmental delays and speech delays. He didn't regress as a child. <br />He had Early Intervention at age one and was diagnosed at 21 months with classic Autism. <br />We've always worked on communication because he understands more than he can tell others. <br />In 2014, he had a hospital stay for mood instability and my son regressed like I've never seen. We are still working to get him back on track. <br />We had to start over with many skills that he had had for many years. <br />During school breaks, my son would regress some, but he'd get back on track within two weeks of being back in school. <br />So, 2014 was a very difficult year on him and we still have some difficult days. <br />I'm thankful that we've helped him be able to walk up and down stairs again, use a cup again, use a fork and spoon again. <br />There's so many changes with the services for 18-21 and he has the Comprehensive Care Waiver as we weren't sure he would be able to keep living at home. <br />We have been able to keep him living at home and use the Family Caregiver Act in order to be his Family Caregivers/Host Home Providers in our own home through Discover Goodwill. <br /><br />I thankful that you have shared Kreed's story because I know that our family is not alone. <br />Nonverbal Autism is hard on us, but I know it's harder on my son because he's the one who struggles to try to get others to understand. Anonymoushttps://www.blogger.com/profile/10608254005721756366noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-55326542765686005942016-01-09T01:33:31.180-08:002016-01-09T01:33:31.180-08:00I love your vlog!! I only have aspergers and want ...I love your vlog!! I only have aspergers and want to be an autism advocate like temple grandin. I work at an aba clinic. Kreed is so inspiring!! Tell h he's my hero!Nerdy galhttps://www.blogger.com/profile/06007608387997935685noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-11366711155080695092016-01-05T20:43:15.159-08:002016-01-05T20:43:15.159-08:00I just finished reading this Blog Post and you &qu...I just finished reading this Blog Post and you "Letters To Kreed" and can't hold back the tears. We hear so much about bullying individuals with disabilities to teachers emotionally hurting students with Autism. <br /><br />I am one who agrees with you that we should celebrate the accomplishments and reward them with love and nit always with materialistic items. When you are advocating for Kreed there are people who are so mean and claim Autism is a made up disability.<br /><br />Your Letters to Kreed affirmed why I have so much love and compassion for families who raise a son or daughter with a disability. I hope to research more about the field of AAC.<br /><br />I could sit here all night responding to your eloquently written Blog. You are blessed to raise Kreed and I'm sure he feels blessed to have you.<br /><br />Please know that I understand why you are sharing this with the Social Media community is to bring awareness and help others in similar situations. <br /><br />Please feel free to e-mail me at assistivetechguru@gmail.com.<br /><br />With Gratitude,<br />Illy(AAC Kafe) Anonymoushttps://www.blogger.com/profile/05261984905417371965noreply@blogger.comtag:blogger.com,1999:blog-765016914859440639.post-64784370910898496842015-12-31T10:42:49.007-08:002015-12-31T10:42:49.007-08:00I love this--thank you!
I love this--thank you!<br />Anonymoushttps://www.blogger.com/profile/00411928637514846406noreply@blogger.com